{"id":2713,"date":"2019-10-15T16:01:07","date_gmt":"2019-10-15T20:01:07","guid":{"rendered":"https:\/\/parkinsonpost.com\/?p=2713"},"modified":"2019-10-15T16:01:07","modified_gmt":"2019-10-15T20:01:07","slug":"i-have-parkinsons-it-doesnt-have-me","status":"publish","type":"post","link":"https:\/\/archiveparkinson.thedev.ca\/fr\/i-have-parkinsons-it-doesnt-have-me\/","title":{"rendered":"\u201cI have Parkinson\u2019s. It doesn\u2019t have me.\u201d"},"content":{"rendered":"
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Jamie Fobert<\/figcaption><\/figure>\n<\/div>\n

Jamie Fobert<\/strong>, then 40 years young, sobbed during the entire two-hour drive home from the neurologist appointment to his home in Belleville, Ontario. Over the next few days, he shared his diagnosis with his family and his employers while trying to just get on with his life.<\/p>\n

Over the next few years, he would redesign his life.<\/span><\/p>\n

His eldest son first pointed out that he wasn\u2019t swinging his right arm while playing soccer. Subsequent consultations with his family doctor and sports medicine specialists led him to that fateful appointment with the neurologist.<\/p>\n

 \u201cI heard the words Parkinson\u2019s disease. I looked down at my watch; it was 10:20 a.m., June 30, 2010. The doctor was wearing a dark dress shirt and khakis. I was bent over, my head down, my elbows on my knees and then it was a blur. The doctor kept talking, but I wasn\u2019t hearing much.\u201d<\/p>\n

Soon after, Fobert made a life-changing connection. He met Stephanie Bruder<\/strong> while she was volunteering at a fundraising event for Parkinson Canada in the local drugstore. Bruder, who also has young-onset Parkinson\u2019s disease (YOPD), introduced him to the local Parkinson\u2019s community, including a support group. \u201cShe\u2019s a small person with a giant heart,\u201d says Fobert.<\/p>\n

A two-hour conversation with Bruder and Robert Brown<\/strong>, another local man living with Parkinson\u2019s, did wonders for Fobert\u2019s outlook. He began to understand the words: \u201cI have Parkinson\u2019s. It doesn\u2019t have me.\u201d<\/strong> He realized that living with Parkinson\u2019s, he would be challenged to \u201cstep up or step aside\u201d \u2026 and he chose to step up.<\/p>\n

Fobert continued and even increased his physical activity, playing soccer and lifting weights. He takes his medications and physician-approved supplements and monitors his diet and schedule. That\u2019s not to say, he doesn\u2019t slip up sometimes. \u201cOne morning I ate a new breakfast cereal without realizing it contained a lot of protein, which can inhibit the absorption of my medication. I was frozen at the kitchen table for quite some time until my youngest son came by and helped me out.\u201d<\/p>\n

Fobert also made some tough decisions in his personal life. He met his new wife Beverly.<\/strong> \u201cIt\u2019s so much easier to live with Parkinson\u2019s when you are supported by people who love you. I\u2019m very lucky to have that,\u201d says Jamie.<\/p>\n

As a career caregiver working with children and adults with developmental challenges, it didn\u2019t take long for Fobert to seek ways to help others. Fobert helps organize events for Parkinson Canada and speaks to media and the public about living with the disease.<\/p>\n

Fobert writes about his Superman tattoo as his \u201cinner strength symbol,\u201d explaining that most days Superman is simply Clark Kent, but Superman appears when extraordinary strength is needed. \u201cAnd some days I need that inner strength when living with Parkinson\u2019s.\u201d<\/p>\n

A lot has happened in the 10 years since his diagnosis. In February, he underwent successful Deep Brain Stimulation<\/strong> surgery, which greatly improved the quality of his life. He needs about a fifth of the medication that he started with. He can drive again. He can now hold a pen again. He can even do some housework\u2014which makes his wife very happy.<\/p>\n

Through good days and bad days, he watched his kids grow into happy, productive adults and he became a grandfather. <\/p>\n

\u201cSome dates are etched permanently in my memory. I\u2019ll never forget the day I was diagnosed with Parkinson\u2019s; the day I married Bev; and the day I had my DBS surgery. \u2018<\/p>\n

Parkinson Canada Research Program<\/strong> funds leading edge research into therapies that improve the quality of life for people living with Parkinson\u2019s. Since 1981, 557 projects have been funded, for over $30 million. For more information on our Research Program\u2014https:\/\/archiveparkinson.thedev.ca\/research\/impact-results\/<\/a><\/p>\n

Living with Parkinson\u2019s and need help?  Call our free Information and Referral<\/strong> service at 1 800 565 3000 <\/strong>— We are here to help, No Matter What.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Jamie Fobert, then 40 years young, sobbed during the entire two-hour drive home from the neurologist appointment to his home … En savoir plus<\/a><\/p>\n","protected":false},"author":37,"featured_media":2714,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[237],"tags":[],"yoast_head":"\n\u201cI have Parkinson\u2019s. It doesn\u2019t have me.\u201d - Parkinson Canada<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u201cI have Parkinson\u2019s. It doesn\u2019t have me.\u201d - Parkinson Canada\" \/>\n<meta property=\"og:description\" content=\"Jamie Fobert, then 40 years young, sobbed during the entire two-hour drive home from the neurologist appointment to his home ... 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