{"id":33390,"date":"2019-05-14T14:33:26","date_gmt":"2019-05-14T18:33:26","guid":{"rendered":"https:\/\/parkinsonpost.com\/?p=2355"},"modified":"2019-05-14T14:33:26","modified_gmt":"2019-05-14T18:33:26","slug":"parkinson-canada-hosts-care-partner-summit","status":"publish","type":"post","link":"https:\/\/archiveparkinson.thedev.ca\/fr\/parkinson-canada-hosts-care-partner-summit\/","title":{"rendered":"Parkinson Canada Hosts Care Partner Summit"},"content":{"rendered":"
\n
\"\"<\/figure>\n<\/div>\n
Register Here<\/a><\/div>\n

Parkinson\u2019s is a family disease, one that takes a team of involved and
\nsupportive caregivers to help an individual with Parkinson\u2019s thrive. In most
\ncases, however, the bulk of responsibility lies with one main care partner\u2014a
\nspouse, a child, or a friend. For this individual, life is changed forever when
\ntheir care recipient is diagnosed with Parkinson\u2019s and they must take on many
\nnew roles. Theirs is a demanding job, and one that many take on willingly
\nwithout hesitation. It\u2019s a role that demands compromise, encouragement and
\nstrength. <\/h4>\n

A care partner\u2019s
\nrole evolves over time and the focus may be on providing emotional and physical
\nsupport to their care recipient, advocating on their behalf, and learning all
\nthat they can about Parkinson\u2019s disease.<\/p>\n

\u201cParkinson\u2019s affects each person in a different way, so there is no \u2018one-size-fits-all\u2019
\napproach to caregiving. This can make it hard to define the role,\u201d says Grace
\nFerrari, Senior Manager, Education and Support, Parkinson Canada. \u201cParkinson\u2019s
\naffects each person in a different way, and changes over time, so there is no single
\napproach for every care partner.\u201d<\/p>\n

Parkinson Canada\u2019s first ever Care Partner Summit<\/em> is a day dedicated entirely<\/strong> to educate and support care partners, and recognize the vital role they play for people with Parkinson\u2019s. Care partners will have the opportunity to connect with each other, and learn from guest speakers. Participants will leave with valuable tools, tips and resources to use daily at home. This interactive day will focus on collaborative care partnering to improve quality of life, both for the care recipient and the care partner. <\/p>\n

Register Here<\/a><\/div>\n

Expert presenters and sessions include: <\/p>\n

\u201c<\/em><\/strong>Caring & Giving: Finding balance in a life that tilts in
\nmany directions\u201d  <\/em><\/p>\n

Neli
\nGontier<\/strong> is the Education &
\nTraining Specialist for Parkinson Canada.  As lead author and developer of
\nseveral educational resources, including the ACT on Time\u2122<\/strong> program and the newly
\nreleased Care Partnering<\/em> book, Neli\u2019s
\npresentation will focus on better understanding the care partner experience;
\nidentifying the emotional, physical and psychosocial needs; assessing the
\nburden that care partners\/caregivers live with; and, learning to prepare an
\neffective Self-Care Plan.  This
\npresentation will be hands-on and engaging.<\/p>\n

\u201cFamily
\nCarer – The Invisible Patient\u201d<\/em><\/p>\n

Dr. Adriana Shnall<\/strong> received both her MSW and her PhD from the
\nFactor-Inwentash Faculty of Social Work (FIFSW), University of Toronto.
\n Adriana is the Manager and Professional Practice Chief for Social Work
\nand Manager for the Koschitzky Family Caregiver Centre and the Seniors
\nCounselling and Referral Program at Baycrest.  Adriana has 25 years of
\nclinical experience working with older adults and their families including
\noutpatient community services, long-term care and inpatient services. 
\nAdriana has an academic appointment with the Faculty at the rank of Assistant
\nProfessor and teaches at the Factor-Inwentash Faculty of Social Work and at the
\nInstitute for the Life Course and Aging, University of Toronto. Adriana\u2019s
\npresentation will identify the caregiver and the stages of caregiving; look at
\nthe stresses that impact caregivers and how to identify them; and, provide
\nstrategies for coping with the challenges of providing care to someone with a
\nlong-term, chronic illness.<\/p>\n

\u201cPersonal growth and social connection within our communities: a person-centered, community-integrated focus on the meaning and being of a care partner\u201d  <\/em><\/p>\n

Jane
\nTeasdale<\/strong> is well known for developing awareness of home and
\nhealthcare issues in the community and for encouraging collaboration between
\npublic health, for profit and not for profit service providers in Ontario\u2019s
\nGreater Toronto Area.  She is the founder
\nof Mosaic Home Care & Community Resource Centres which offers a person
\ncentered community integrated model of care that is unique to the homecare
\nindustry.  Jane\u2019s presentation will focus
\non person-centered care outside of the clinical or medical frame.  It will explore the importance of meaningful
\nconversations, social networks and strong communities for social and emotional
\nwell-being and how to address isolation and loneliness. It will also guide you
\non how to find, assess and use community supports and services for improved
\nsocial, emotional and physical well-being. <\/p>\n

\u201cThe Summit will provide care partners with information, tools and tips to help them work through their challenges and successfully manage the care partner, care recipient relationship,\u201d adds Ferrari.<\/p>\n

Care Partnering: Managing Parkinson\u2019s Disease Together<\/em> <\/strong>is a book dedicated to care partners. To order your complimentary copy,<\/em> contact <\/strong>education@parkinson.ca<\/a> <\/p>\n

Not attending the Summit?  Here\u2019s some helpful information.<\/em><\/p>\n

Lessons Learned<\/strong>
Over and over, care partners report similar experiences about the challenges they face in helping their care recipient. Because of the progressive, degenerative nature of Parkinson\u2019s, a care partner is challenged to know what degree of support their care recipient needs at any given time. It is important that a person with Parkinson\u2019s is able to speak for themselves and manage their own life for as long as possible; however, the care partner is a key member of the team. The relationship is sometimes described as one that begins as \u2018partner\u2019 and evolves into \u2019care provider.\u201d<\/p>\n

Care partners, here
\nare a few practical steps for you to follow:<\/em><\/p>\n

    \n
  1. Be an active member of the team:<\/strong> attend medical appointments and be involved in every decision about your care recipient\u2019s treatment. Research shows that people with actively involved care partners tend to do better.<\/li>\n
  2. Ask questions until you understand the answer:<\/strong> Parkinson\u2019s is a complex, neurodegenerative disorder. There is a lot to understand. Don\u2019t hesitate to ask questions until you feel comfortable that you and the person you care for fully understands the answer\u2014this includes information about medication (what it is for, side effects, when to take it, and things to avoid).<\/li>\n
  3. Keep your care recipient honest:<\/strong> people tend to leave out important pieces of information when speaking with their doctor\/neurologist either due to embarrassment or they simply think it doesn\u2019t matter. It is very important that care partners encourage their loved ones to tell their doctor everything including symptoms, changes in behaviour, other medications or supplements.<\/li>\n
  4. Speak up for the person you care for:<\/strong> sometimes people with Parkinson\u2019s simply cannot communicate for themselves so care partners must speak up for them.<\/li>\n
  5. Know what hospitals and\/or care facilities have expertise with Parkinson\u2019s disease:<\/strong> lack of Parkinson\u2019s education is the primary complaint that Canadians with Parkinson\u2019s and their care partners have reported about interactions with healthcare professionals coast-to-coast. If you have the opportunity, choose a facility that understands how to best care for someone with Parkinson\u2019s disease.<\/li>\n
  6. Get to know the nurses:<\/strong> whether in hospital, a care facility or at the movement disorder clinic, get to know the nurse(s) who will provide care. If necessary, explain the importance of administering medications on time and act as a Parkinson\u2019s resource for them\u2014your efforts will not only benefit your care recipient, but also every person with Parkinson\u2019s who needs care in the future.<\/li>\n
  7. Take the opportunity to educate others:<\/strong> whether in a hospital, walking down the street or sitting in a restaurant, chances are that some aspect of Parkinson\u2019s will draw the attention of others to your care recipient. Make the most of the situation by explaining what is happening and letting others know how they can help.<\/li>\n
  8. Become an expert about supports and services:<\/strong> find out what kind of support is available in your community and what the criteria for qualification are (home care, disability, CPP, tax credits, and organizations like Parkinson Canada).<\/li>\n
  9. Befriend another care partner:<\/strong> having someone who understands your situation can be helpful. Over 240 Parkinson support groups operate in Canada\u2014simply contact your Parkinson Canada local office<\/a> to find the group best suited to you.<\/li>\n<\/ol>\n

    Questions? 
    \nWe are here to help.  1 800 565
    \n3000<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

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