{"id":371,"date":"2011-06-01T12:07:12","date_gmt":"2011-06-01T16:07:12","guid":{"rendered":"http:\/\/parkinson.netfirms.com\/epp_e\/?p=371"},"modified":"2011-06-01T12:07:12","modified_gmt":"2011-06-01T16:07:12","slug":"advocacy-driving-better-policy","status":"publish","type":"post","link":"https:\/\/archiveparkinson.thedev.ca\/fr\/advocacy-driving-better-policy\/","title":{"rendered":"Advocacy: Driving better policy"},"content":{"rendered":"<p>By Yvon Trepanier, Chair, National Advocacy Committee<\/p>\n<p><span style=\"line-height: 1.5;\">Fast forward to 2011,<\/span>In 2005, Parkinson Society Canada\u2019s national advocacy committee set a big goal \u2013 to launch a national study to learn about the impact of Parkinson\u2019s disease in Canada. Little did they know, this national study would grow to become Canada\u2019s first-ever study of not only Parkinson\u2019s disease, but 13 other neurological conditions as well. Nor could they have imagined that the $15 million study would be funded entirely by the Government of Canada, with full support from the federal health portfolio (Health Canada, Public Health Agency of Canada, Canadian Institutes of Health Research).<\/p>\n<ul>\n<li>the National Population Study of Neurological Conditions is well underway, with Parkinson\u2019s included in 17 of 18 research projects;<\/li>\n<li>neurological conditions have been added to the federal surveillance system for chronic disease;<\/li>\n<li>the first-ever Parliamentary Subcommittee on Neurological Diseases heard 30 hours of testimony (including 4 hours of Parkinson\u2019s-specific testimony);<\/li>\n<li>a framework for a national brain strategy has been tabled with federal policy makers;<\/li>\n<li>and, as evidence of how much attention neurological conditions have garnered in recent years, policy related to brain health was included in every national party platform during the recent federal election.<\/li>\n<\/ul>\n<p>\u201cThe progress is staggering,\u201d says Joyce Gordon, CEO of Parkinson Society Canada and Chair of Neurological Health Charities Canada (NHCC). \u201cCredit goes to volunteers and staff within the 26 member organizations of the NHCC. Everyone has rolled up their sleeves and pitched in with commitment and a real sense of partnership.\u201d<\/p>\n<p>Looking ahead, Parkinson Society Canada is committed to building on our positive and productive working relationship with the Government of Canada. During the election, the Conservative Party of Canada made two important commitments to our community:<\/p>\n<ul>\n<li>to invest up to $100 million in neuroscience research; and<\/li>\n<li>to implement a new Family Caregiver Tax Benefit.<\/li>\n<\/ul>\n<p>These two promises begin to address key elements of the proposed national brain strategy and Parkinson Society Canada will work with members of Canada\u2019s 41st Parliament and federal policy makers to realize these commitments as soon as possible. This is an excellent start but much more is needed to improve the quality of life of more than 100,000 Canadians with Parkinson\u2019s, and more than 5 million Canadians with neurological conditions.<\/p>\n<p>Your support for this work is critical. To learn more about Parkinson Society Canada\u2019s advocacy program, please visit the <a href=\"http:\/\/archiveparkinson.thedev.ca\/site\/c.kgLNIWODKpF\/b.5184093\/k.7E35\/Advocacy_Centre.htm\" target=\"_blank\" rel=\"noopener nofollow\">Advocacy Centre<\/a> at parkinson.ca.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>By Yvon Trepanier, Chair, National Advocacy Committee Fast forward to 2011,In 2005, Parkinson Society Canada\u2019s national advocacy committee set a &#8230; <a href=\"https:\/\/archiveparkinson.thedev.ca\/fr\/advocacy-driving-better-policy\/\" class=\"more-link\">En savoir plus<\/a><\/p>\n","protected":false},"author":37,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[237],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v20.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Advocacy: Driving better policy - Parkinson Canada<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Advocacy: Driving better policy - Parkinson Canada\" \/>\n<meta property=\"og:description\" content=\"By Yvon Trepanier, Chair, National Advocacy Committee Fast forward to 2011,In 2005, Parkinson Society Canada\u2019s national advocacy committee set a ... 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