{"id":39879,"date":"2023-03-16T14:27:37","date_gmt":"2023-03-16T18:27:37","guid":{"rendered":"https:\/\/www.parkinson.ca\/?p=39879"},"modified":"2023-03-21T10:37:48","modified_gmt":"2023-03-21T14:37:48","slug":"reporting-rates-of-parkinsons-in-canada","status":"publish","type":"post","link":"https:\/\/archiveparkinson.thedev.ca\/fr\/reporting-rates-of-parkinsons-in-canada\/","title":{"rendered":"Reporting rates of Parkinson\u2019s in Canada"},"content":{"rendered":"

To effectively serve the Parkinson\u2019s community, it is important to have a strong understanding of our numbers. Understanding the size and scope of the Canadian Parkinson\u2019s community helps us convey the urgency of our cause to government and supporters and is fundamental to our strategic planning.\u00a0<\/span>\u00a0<\/span><\/p>\n

Recently, an academic publication was released reporting new incidence rates (number of new diagnoses per year) of Parkinson\u2019s for Canada and the US. The study made their calculations using five datasets of medical billing records\u2013 four from the US and one from Ontario.\u00a0<\/span>\u00a0<\/span><\/p>\n

\u00a0<\/span>\"Incidence<\/span><\/p>\n

One of the major findings from the paper was that the US had much higher rates of new diagnoses than had previously been reported, jumping from 60,000 new cases per year to an estimated 90,000. This garnered lots of interest and news attention from the Parkinson\u2019s community and left us with an obvious next question \u2013 are the numbers for Canada also being underreported?<\/span>\u00a0<\/span><\/p>\n

\"\"<\/p>\n

In Canada, we are fortunate the federal government tracks many chronic conditions through a project called the Canadian Chronic Disease Surveillance System (CCDSS). The CCDSS uses provincial medical billing records to track chronic diseases at the national and provincial levels. <\/span>From 2019-2020, the CCDSS reported over 12,500 new diagnoses of Parkinson\u2019s and, overall, there were more than 103 000 cases of Parkinson\u2019s in Canada.<\/span><\/b> The CCDSS offers an interactive online tool to visualize details and trends that you can view <\/span>here<\/span><\/a>.\u00a0<\/span>\u00a0<\/span><\/p>\n

In collaboration with one of the study authors, Dr. Connie Marras <\/span>a professor of Neurology at the University of Toronto\u202fand Movement Disorders Specialist at the University Health Network, Parkinson Canada compared current the federal government reporting with the publication analysis. We were pleased to find the incidence rates reported by the CCDSS and the academic publication were comparable. \u201cThe reporting from both [the CCDSS and our publication] are very similar. Both are based on health services data and use the same Ontario database. The CCDSS reporting also incorporates similar data from other provinces,\u201d explains Dr. Marras.<\/span>\u00a0<\/span><\/p>\n

This means Canadian reporting of rates of Parkinson\u2019s was not significantly underestimated \u2013 as was the case in the US.\u00a0<\/span>\u00a0<\/span><\/p>\n

Importantly though, regardless of what model is being used, all reported rates of Parkinson\u2019s are likely an underestimate. As Dr. Marras explains, \u201cBecause these numbers come from health services data, a person must have an encounter with the healthcare system to be counted. Therefore, undiagnosed Parkinson\u2019s will be missed. And many individuals with Parkinson\u2019s who are not under the regular care of a neurologist might also be missed as family doctors may not always use the specific billing codes for Parkinson\u2019s.\u201d\u00a0<\/span>\u00a0<\/span><\/p>\n

With so many sources of data and information about Parkinson\u2019s it can be difficult to compare and analyze. Parkinson Canada is here to help by staying informed on issues that are relevant for the Canadian Parkinson\u2019s community so we can share it with you. Keep up with the latest research news<\/a><\/span> and sign up for our newsletter to get this info right to your inbox. <\/span>\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

To effectively serve the Parkinson\u2019s community, it is important to have a strong understanding of our numbers. Understanding the size … En savoir plus<\/a><\/p>\n","protected":false},"author":82,"featured_media":39886,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[237,246],"tags":[],"yoast_head":"\nReporting rates of Parkinson\u2019s in Canada - Parkinson Canada<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Reporting rates of Parkinson\u2019s in Canada - Parkinson Canada\" \/>\n<meta property=\"og:description\" content=\"To effectively serve the Parkinson\u2019s community, it is important to have a strong understanding of our numbers. Understanding the size ... 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