{"id":445,"date":"2010-12-01T12:04:20","date_gmt":"2010-12-01T17:04:20","guid":{"rendered":"http:\/\/parkinson.netfirms.com\/epp_e\/?p=445"},"modified":"2010-12-01T12:04:20","modified_gmt":"2010-12-01T17:04:20","slug":"three-things-i-learned-at-the-world-parkinson-congress-scotland-2010","status":"publish","type":"post","link":"https:\/\/archiveparkinson.thedev.ca\/fr\/three-things-i-learned-at-the-world-parkinson-congress-scotland-2010\/","title":{"rendered":"Three things I learned at the World Parkinson Congress, Scotland, 2010"},"content":{"rendered":"

\"Barbara<\/a><\/p>\n

Barbara Snelgrove<\/strong>
\nDirector, Education and Support Services
\nParkinson Society Canada<\/p>\n

The first thing I learned<\/strong> by attending the World Parkinson Congress, is that Parkinson Society Canada is on the right track and in some areas, leading the way. Our culture is inclusive of people living with Parkinson\u2019s, and that also includes the care partner. Many Parkinson\u2019s organizations do not include them, which means care partners have nowhere to go to find information and support.<\/p>\n

The 2010 Congress included people living with Parkinson\u2019s as congress organizers, key-note speakers and workshop leaders. The voice of the person living with Parkinson\u2019s was loud and clear: they are the experts in the lived experience. For example:
\n\u201cNothing about me without me!\u201d<\/em>
\n\u201cPatient as teachers and as inspiration.\u201d<\/em>
\n\u201cThe definition of Parkinson\u2019s is a matter of perspective.\u201d<\/em><\/p>\n

Parkinson Society Canada\u2019s value of empowering people to be involved in managing their condition is also on target. Based on the World Parkinson Charter, our person-centred approach is an emerging trend in models of care also seen in Israel and the Netherlands. The medical model is being replaced by a comprehensive model that focuses on quality of life.<\/p>\n

Parkinson Society Canada\u2019s poster presentation on Test your Parkinson\u2019s IQ<\/a> was a hit! Talking publicly about the motor and non-motor symptoms supports the understanding that Parkinson\u2019s is a complex condition. People with Parkinson\u2019s shared their experience about losing their sense of smell long before their tremor and not knowing what this might mean. Visitors to the poster enjoyed the engaging way of presenting this information and several Parkinson\u2019s organizations asked to duplicate the test for their own use.<\/p>\n

It was gratifying to have our work validated and to find partners on the international stage who share our values and commitment to improving the lives of people living with Parkinson\u2019s.<\/p>\n

The second thing I learned<\/strong> at the Congress is that research is advancing and expanding our knowledge about Parkinson\u2019s. While it may be true that we have not yet found the Parkinson\u2019s breakthrough, I believe we are breaking down the intricacies of this complex condition. For example:<\/p>\n

Genetics.<\/strong> We can no longer call Parkinson\u2019s idiopathic because many genes have been (and continue to be) discovered that play a role. There is still much to learn, for example, some genes are predictive, some may mutate on their own, or when exposed to external forces; some genes can be manipulated to interact with neurons that are involved in Parkinson\u2019s. (Post-Congress we learned of further research in mitochondria and Canadian researchers have been heavily involved in genetics research.)<\/p>\n

Pre-clinical\/bio-markers.<\/strong> This was a huge research topic throughout the Congress. It is clear that by the time the motor symptoms are evident, it may be too late to impact the damage in the brain. The focus should be earlier detection and identifying what might be early predictors, risk factors or biomarkers. This was evident in research into cell biology, redefining the staging of Parkinson\u2019s to include some of the early symptoms before a clinical diagnosis is made, and, of course, targets for therapeutic intervention.<\/p>\n

More than dopamine.<\/strong> Though dopamine impacts motor symptoms, there are many other neurotransmitters involved in the non-motor symptoms; for example, what is the role of a-synuclein in lewy bodies, which is shared with Parkinson\u2019s? Is Parkinson\u2019s disease the same or linked to Diffuse Lewy body disease? What about acetylcholine that impacts cognitive function, a common non-motor symptom in Parkinson\u2019s disease?<\/p>\n

Intervention.<\/strong> We have successful treatment of dopamine-related symptoms, but we need to treat the non-motor symptoms that impact quality of life. There is interest in combining drugs with other non-medical interventions, such as exercise and cognitive behavioural therapy.<\/p>\n

Exercise was a big topic. While research is not conclusive that it may impact the progression of Parkinson\u2019s, the literature shows that exercise does impact brain function. This is important in a progressive illness because if a person exercises, their level of disability can be reduced. And let\u2019s not forget the impact of creative therapies on emotional health, e.g., dance, music, writing, painting. (Parkinson Society Canada continues to receive submissions to our Creative Expressions<\/a> web site launched in 2009. Many regional partners also encourage people with Parkinson\u2019s to display their creative talents.)<\/p>\n

The theme of the Congress was Bringing the Parkinson\u2019s Community Together and it was successful. Parkinson Society Canada will have the honour of hosting the next Congress in Montreal in 2013 when we will welcome the world to our Canadian stage. I can\u2019t wait to showcase what we will have accomplished by then!<\/p>\n

Oh, the third thing I learned<\/strong> while in Scotland\u2026 I don\u2019t like haggis!<\/p>\n","protected":false},"excerpt":{"rendered":"

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