{"id":611,"date":"2009-04-01T12:02:54","date_gmt":"2009-04-01T16:02:54","guid":{"rendered":"http:\/\/parkinson.netfirms.com\/epp_e\/?p=611"},"modified":"2009-04-01T12:02:54","modified_gmt":"2009-04-01T16:02:54","slug":"working-with-one-voice","status":"publish","type":"post","link":"https:\/\/archiveparkinson.thedev.ca\/fr\/working-with-one-voice\/","title":{"rendered":"Working with One Voice"},"content":{"rendered":"

\"Yvon By Yvon Trepanier,
\nChair, National Advocacy Committee<\/p>\n

First steps taken toward national research study<\/strong><\/p>\n

Over 3,000 people with or affected by neurological disorders responded to an online questionnaire, in February 2009, asking what types of information should be collected for a four-year national research study to uncover the incidence, prevalence, risk factors and impacts of neurological conditions across Canada. The study is spearheaded by Neurological Health Charities Canada<\/a> (NHCC), a collective of organizations that represent people with chronic, often progressive, brain diseases, disorders and injuries in Canada. The federal government has committed $15 million to fund the project. Parkinson Society Canada plays a leadership role in the NHCC.<\/p>\n

Tulips sent to Parliament Hill<\/strong><\/p>\n

For the April Parkinson\u2019s Awareness Month, the National Advocacy Committee:
\n\u2022 sent fresh tulips to the Prime Minister and federal Minister of Health;
\n\u2022 had an Awareness Month announcement \u00a0read in the House of Commons by Barrie MP Patrick Brown (download wmv)<\/a>, and read in the Senate by Senator Sharon Carstairs;
\n\u2022 mailed Research Highlights (pdf)<\/a> to all MPs and Senators, along with a letter signed by PSC President & CEO Joyce Gordon and National Advocacy Committee Chair, Yvon Trepanier;
\n\u2022 sent an information page to all MPs for inclusion in their householder newsletters.<\/p>\n

Tell us your experiences of genetic discrimination<\/strong><\/p>\n

PSC is participating in an initiative, led by the Huntington Society of Canada, to persuade the federal government to create legislation that will protect the privacy of individual genetic information and protect against discrimination based on genetic predisposition to disease. If you have had personal experience of either a breach of privacy of genetic information or genetic discrimination, contact us at general.info@parkinson.ca<\/a>.<\/p>\n

Meet us at the PSC Advocacy Caf\u00e9<\/a><\/strong><\/p>\n

Advocating for a better life for Canadians with Parkinson\u2019s disease and their families is a community effort. We need your voice and support. You can join us at the PSC Advocacy Caf\u00e9 to share information and ideas on how we can work together, or send an email to advocacy@parkinson.ca<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

By Yvon Trepanier, Chair, National Advocacy Committee First steps taken toward national research study Over 3,000 people with or affected … En savoir plus<\/a><\/p>\n","protected":false},"author":37,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[237],"tags":[],"yoast_head":"\nWorking with One Voice - Parkinson Canada<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Working with One Voice - Parkinson Canada\" \/>\n<meta property=\"og:description\" content=\"By Yvon Trepanier, Chair, National Advocacy Committee First steps taken toward national research study Over 3,000 people with or affected ... 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